You should control your own health care data (Niam Yaraghi, Brookings)

If you have ever stayed at a hospital, visited a physician's office or filled a prescription at a U.S. pharmacy, your medical information—stripped of identifying data—is most likely collected, shared and analyzed for various medical and marketing purposes. Your data may have helped a pharmaceutical company sell more drugs, a researcher find a better treatment option for a disease or a government agency predict the next flu outbreak. This is done through a multibillion-dollar industry that feeds on your medical data and reaps millions of dollars from analyzing it, without asking your permission or sharing the resulting profits with you.

http://www.brookings.edu/blogs/techtank/posts/2016/02/17-patients-should-control-health-care-data-yaraghi